9 years 7 months
9 YEARS 7 MONTHS
We got to see Mummy friend Misty and Russell I was super off didn't feel great.. Didn't want to really eat my food..and was ready to get out to the house so acted out a little But I let mummy talk a little before being a pushy
On the way out Of course we had to take pictures at look out mountain …. I was not in the mood but I did it to make her happy…. we got out I said cheese and wanted back in the car….
I got to eat at Ginger and Spice and Cim made mummy her favorite sushi and I got my noodles a few times so I was super happy…
Janlyn and her little boy came over to see me at Miss Cindy’s house.. I still am not myself this bite has made me feel sleepy and I just want to rest and look at things I can print on my 3-D printer when I get home.. the last few weeks have been exhausting.. one thing about being in texas though is I get my HEB chips … ….
We went by to see Miss Casey at Blairs.. I was still in a bad mood and didn’t want to just talk and hang out I wanted to eat and go back to rest.. I really want to go see Grandma but we are in Marble Falls not Austin so makes It super hard b/c of how long it takes to get there ..
I kept putting things in text to Grandma telling her I wanted to go to her house… Not that it helps me.. Mummy said I need to go to the bathroom on my own for #2 to stay with Grandma without her.. sometimes I think that is a good incentive, but then again it is hard so not sure I want to do that .. although Grandma is worth it.. but guess I will deal with mum being there for now..
Friday we had to get to a meeting in Austin so we got up early and went to mummy meeting .. I didn't want to be there I wanted food and wanted Grandma.. Mummy said we had to get pictures so I was going and cheesing everyone to get done. I cheesed with Mario, and with Jeff and then the whole group.. Shonda was missing b/c she went out of town.. Finally we were able to leave and go to grandmas.. went and spent time with her and Uncle Steven.. got to see David and Andrew also and my cousins.. Hanna, Connor and Ethan.. I was hiding Grandma phone all over the house and using her watch to find it. .I thought It was so funny to find it with the watch.. Became our game … I love my Grandma … she gets me any food, toy or treat I want.. she is the BEST. I love to give her hugs and kisses. She talks to me like I am normal and doesn’t do all the BABY talk to me.. I do understand , I don’t know why people think I don’t just b/c I can’t talk . When people are blind they can still hear, feel, read, write and know what is around them. When people are deaf they can still read, write , and communicate with people…. We just learn a different way , but that doesn’t mean we are not capable of being a human worth talking to normal! and it doesn't mean we are not smart!!!!
WE went back to the house in the hill country and got things loaded for us to head back home..We had dinner with Uncle Travis, Aunt Arlett and Aneliah and they came over and sat with us a while, Travis can still lift me .. one of a few people who can still. . We loaded up left that evening and drove to Grandmas to pick up my new 3d resin printer Uncle Steven gave us. and groceries..WE left from there it was late so we stopped at Temple Buc-ee, (went thru car wash to get ready for our trip home). Stopped at Hillsboro Bucee and then went to our cousin Terri's stayed over night with them So our trip was broken up a little .. We left her house went to Ennis Buc-ee it is a small one.. Then we went to Terrell and Royse City and after I got all my Buc-ee fix we got on the final stretch.
WE stopped in Malvern to see my sissy Katlynn, Bubba Isac , Cousin Teen Teen and Aunt Susie.. my nephews ollie and Rett. Ollie sat beside me to see what I was doing on my tablet ollie is a lot of fun .. we all ate and then took pictures outside..
Aunti Melissa and my cousins Ti and Christopher came up to see me as well . It as so nice to see family but I was definitely ready to be home ... . When I am ready I am not always super friendly but I humored everyone ..:)
WE got back on the road and got home around 8 that evening.. It is nice to be home.. hopefully life will calm a little .. I am now sitting in the front seat I love sitting up front , picking the music and turning on the hazard lights although mummy said she has to tell me when those are needed and I am not supposed to touch them unless she tells me it is ok. I like watching traffic and being silly and love to hold mummy hand..
We had our therapy starting back .. it is hard to get back into a routine when we travel some …. We have been working on emotions in music and my words that I work on with Hilary and mum ..
It is garden time again and I have been helping some with the weeds and watering.. watering is my favorite of course I like to water mummy… I help pulling the hose out and picking things that are ready. When mummy gets the water hose I have to run b/c she will get me too…
I love to take long showers and not let mummy take her bath .. it is funny.. she comes in to get me out and I will be laying in the bathtub enjoying the water and she makes me get out finally ;(
I have been working on my 3d prints .. I print lots of things .. Right now I am making cats, wolves, bears, pigs and sometimes in between mummy and daddy will make things.. if daddy is making boring things I will stop it and bring my stuff.. I have figured out by watching how to remove the filament.. ( I don’t put it back in the bag and mummy got in trouble for it hahaha). I am learning how to load what I want in there tho.. I just need to learn to put the other back up.
We had a surprise visit from Miss Wendy from Napa and her family. They were in Tennessee for a visit and they stopped to see us and we all went to Little Bite with Michelle, Josh and Kade… it was good food just had to wait a really long time and I am not good with waiting on food especially not outside … But when Wendy is around it is always a fun time of yelling and having fun.. She is the BEST ..
Daddy had a few Cadbury eggs he had not opened and I opened them all and left for him on his coffee stuff. He still hasn’t eaten them and I tried helping him by opening… I don’t want to eat them they have the cream in them and I like chocolate.. :)
I love watching my machine print it always makes me super happy. I love to jump and laugh. I talk to grandma all the time on FaceTime and take her down and show her my machines and all the stuff I am doing.. I am always making things for her and all my therapist and friends.
Mummy mowing is another thing that makes me laugh a lot.. I love going outside an sitting on the back porch .. she has been working really hard tying to get the pool where I can swim again!! It is yucky and things broke in the cold months and she had to order parts.
Miss Kyrstin came over to keep me while Miss Lisa took mummy for surgery .. I got to sleep in and daddy got home at 7:15 from work and Miss Kyrstin said she was going to go check on mummy. Later that afternoon mummy came home from the hospital and was moving very slow for her. Miss Lisa dropped her off and brought her some goodies for her to recover. Daddy and I went to get her prescription when it was ready . The next day daddy had to work so I helped take care of her and was trying not to need a lot.. although sometimes there are things I just can’t do but I did what I could to help her. Sissy Brought food for us. Terria from Church sent money for sissy to grab us dinner and that helped, mummy didn’t really feel like cooking today. The next day daddy had to work again he had filled in to help someone else that needed off so I was the helper again. Mummy did best she could to make sure I had things I needed I went and got her water from down stairs and I got pancakes for me and she helped me to put in microwave. WE did door dash for food it helped a lot so she didn’t have to cook and I did help putting my trash away. She is tired but I am doing the best I can to be a good helper. I sat with her in the bed and played my game and she came down stairs and I sat on couch with her but did go check on my machines a lot. Sissy was asleep at the house so it did help if we needed her. She came back that evening and did check in to make sure we didn’t need anything.
IN therapy Miss Hilary has been working with me to get me to say turn , watch, it, go , I want , they are trying to get me to use more verbs instead of just a few simple words to get what I want across. I think I do just fine you get it and that is all that is important right.. Why does everyone have to be grammatically correct…
Miss Morgan threw me under the bus as the adults say.. She literally gave mummy videos showing I can dress myself… well I can put a shirt on!
And she showed mummy I can button. It is bad enough I have to put on my own shoes like really !!!
The state of Tennessee passed a Bill and of course that means more pictures of me and printed pieces of paper !!! Nobody has to worry about how big I am or if I am changing there is at least 20 pics a day or more of me!!
This bill is supposed to help me with therapy so I guess it is a good thing and it is nice that the world is learning or at least Tennessee knows what kLEEFSTRA SYNDROME IS.. and knows it is not Autism ..
We went to Terria and Alek wedding!! Needless to say she was beautiful and he was well handsome.. just said my crush is married….
Mummy took me to therapy today and after therapy we were going to get Aunt Dawn at the airport she was coming in for a few days and since the flight was delayed we went to Build a bear they are supposed to have paddington but they didn’t.. so sad.. I made a Peter Rabbit and Cameron a really beautiful girl there helped me to get my rabbit stuffed and helped me get my paddington ordered for me to make.. I got to stuff it, put a heart and Cameron sewed it up for me … I love my new rabbit for my collection of Peter Rabbit… :) So I get to go back to build a bear and stuff my Paddington when it comes in the mail. We finished and headed to the airport to get Aunt Dawn. We sat in the cell phone lot and I loved watching all of the plans land and take off. Going to the terminal was so cool watching the plan cross the road above us ..
This month was not as crazy with travel so I got some much needed stay at home time and normal for us!! Mummy is recovering still and I am still being a big helper.
July is coming which means fireworks!!!!!! Can’t wait to share we are going with Auntie Lisa and Tony to Cumberland Furnace again !!! (Daddy is going too… and Aunt Dawn and Alex!! ) Fun times!!
Love you all
Liam
Liam www.runwithliam.org Facebook: Run with Liam (group) Insta: Kleefstra Run with Liam Tik Tok: Kleefstra Run with Liam