Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

Mummy told me I had a surprise coming from Buc-ee Daddy I have been watching and this BIG truck pulled in this am and I was like what is that .. I watched as it backed in and mummy said it was my surprise from Bucee. I watched as he lowered the back in and this BIG box was lowered .. the guy had to use a special thing to pick it up and move it under the carport for us to open.

So I got my shoes took off my santa shoes and put them on and showed her!! Now I think I made a big mistake b/c I can’t tell her I can’t do it… hmmm not sure if that was worth going to town..

Was eating dinner and asked mummy to eat and she said she already ate a tortilla and I said “Tortilla “ and mummy went crazy and made me go tell daddy tortilla not sure why that was that exciting but I got excited bc she was excited I say tortilla in sign language allllll the time and they never ever get that excited but the one day I say it with my voice she almost cries!

we are going to the STATE CAPITOL in Tennessee to talk to Mary Littleton our state Rep and some other people to try to get help for our insurance to pay for my therapy.

for me it means well EXTREME WORKOUT.. CrossFit for kids with disabilities Napa