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About Me

My name is Liam. I am 8 years old and I live in Dickson, Tennessee. I was born happy and healthy in Marble Falls, TX, but my doctor tells me I have a very rare genetic disorder called Kleefstra Syndrome (KS).

How can you help?

My journey is uncertain. Only time will tell what I am capable of learning. But it will be a long road and there will be a lot of bills. Anything you can do to help is greatly appreciated!

Help me on my journey

What is Kleefstra Syndrome?

According to the National Institutes of Health, Kleefstra syndrome (KS) is a genetic disorder characterized by intellectual disability, childhood hypotonia, severe expressive speech delay and a distinctive facial appearance with a spectrum of additional clinical features.

What is KS?