Help Me On My Journey
Recent Stories
Feb 24, 2020
Today I’m in my mind a lot. Watching people’s sweet littles hit milestones, do karate, ballet, have friends it is so sweet to watch them grown but hard to watch my precious little not progress into the stage of being 4.
Feb 02, 2020
Pictures credits go to Jennifer Rice https://sparrowsheartphotography.com Sparrow Heart Photography January 2020 Doman Program Kleefstra Syndrome Journey..... The new Year for us Started a bit different than other families It sure seems my life can’t be the slightest Normal or laid back. I don’t know why I can’t lose weight seems like Liam was diagnosed and my metabolism told me it had Kleefstra too and took a nap ... a permanent nap that is. I never realize how alone parents of special needs kids are. I mean having friends people to come over and hang out or that just understand the melt downs, the program and just the new day to day life. Even volunteering to maybe come Hang out and help a little guess it’s scary and they don’t understand so easier to stay away than to learn. And having a caregiver is more for people in countries that care to help people . America well not so much no help just tons of red tape and lots of reasons why you don’t qualify even though Liam is diagnosed with a disability that could affect him forever .
Dec 11, 2019
Day like these.... Christmas is 14 days away and I am trying to get in the mood... At least it is a little cooler...
Dec 05, 2019
Some days are good Some days are bad.... But in the end we appreciate the days we have!