10 years 7 months

10 Years 7 Months

June started off busy and crazy .. .Sissy and Bubba are moving to Ohio, we are all super sad about it.. even tho Daisy is wild and crazy I have a good time playing with her in moderation.. I do love to see her and Darley… Bubba is in school and Sissy is back to work so Darley and Daisy have been over a lot more than they normally were…. Daisy always wants to swim and play outside.. I just stay inside and do my 3D printing, play with my transformer (fireman Sam and Postman pat) or play Minecraft with some of my favorite music playing… I know I can always run away to my Buc-ee Room to get away from the littles..

Daisy and I will play chase some, but I get tired and go to my areas and she will go do something else. Like Torment Daddy.. he loves it.. and She loves her Papi .. he does WHATEVER she says… he says he loves timeout b/c he can take a nap and get a break..

I have been going to my therapies and Mum and Dad will alternate so they can stay with the littles while one takes me .. Daddy was off b/c they wouldn’t allow him back to work without a Doctor note.. He was fine but had a few test on his days off and they didn’t know what it was about so they made him get a doctor release and allowed him to be home a little longer with us and help mummy While sissy and bubba pack, work , finish school and get ready for their big move… we are all trying to spend time with them as much as possible before they leave.. I won’t get to see them as much and I will really miss my bubba and my sissy..

I finally got into the pool for a little while but didn’t stay long just long enough to hop around and laugh a little .. The littles splash and throw things in my face and I prefer not to have all that going on .. I am still uneasy with water since Dolphins… I didn’t like Dolphins after we left the vandy one.. I just didn’t want to get into the water it was just not a good experience for me… So I have been very hesitant to get into the pool at home now even though my home is my place I can do things on my own terms…

Chris and Lilye came into town to see us … they are going to Gatlinburg (wish I could go) not fair they get Buc-ees and will probably see a bear on their trip… we had to AI a bear into our picture b/c we didn’t see anything !!!! Apparently there was one in Dickson County but that was probably AI too.. :) We went to the Loretta Lynn Ranch with them and of course took a million pictures…. WE took them to Jeannines and they tried Chocolate Gravy a Tennessee Classic. I ate my French toast!!! Jeannine makes me French Toast anytime I come even when it isn’t breakfast.. I feel so special there!!!!

We got home from the day at the ranch and I chilled while mummy and Lilye chatted.. Chris and daddy hung out and Mummy smoked some Salmon, steaks, and made hamburgers for us this week. Also made some veggies for dinner… I ate salmon, broccoli, carrots and cauliflower and then got my cupcake and talked her into a ding dong too :) I mean I don’t eat icing just cake and they were not big cup cake…

Mum went and got my nephew Ollie and him and Daisy played super hard everyday. They were loud and having a blast ! I found some quiet places to hide and played Minecraft . I have been playing all sorts of music . Found mum playlist and really enjoy Aerosmith!!! I play lots of cool music while I play now ! I like to play it loud ..
They went swimming every day.. I went once with them .. it was fun but they like it more than me.. I went another time with Sissy and Bubba.. I love it when they swim with me. They had dance parties, screamed, shouted, played hide and seek, jumped on trampoline and wow they have energy!

Bubba brother Winnie, Sister Chloe and her fiancé came over after they loaded all their belongings to go to OHIO and Winnie jumped in the pool and they all had a big balloon fight.. . I joined in a little b/c they made me.. it was fun I won’t lie but they were having more fun than me.. I like to play my game but I did try to enjoy it .. :)

We went to the firehouse to see daddy and took Ollie and Daisy- they played hide and seek around the trucks.. I hung out with everyone else. WE had to take Daddy something he left at home.. he leaves a lot of things.. mummy is always running bc he forgets things … She always says he would leave his head behind if it wasn’t attached.. Ollie was sleeping on the Big Joe bean bag and had this really cool light I was interested in how it lit up things..

Darley is almost 4 months old.. She is growing.. I really love her.. I like to check on her and kiss her on the top of her head.. Mum told me to always kiss babies on top of the head never in the face.. I like to make sure she is ok. I really love her.

Ollie loves Minecraft like me .. he came upstairs and sat with me in my room for a bit and watched me play.. When I was playing downstairs in the kitchen he loved to sit with me and watch me.. I let him use my switch and my other tablet to play also..

Friday we took Ollie home .. I rode with mummy to take him. He lives in Louisiana… we went thru Mississippi, Arkansas and then Louisiana.. On way home mum made a little detour we did an all nighter.. We are good at those by now.. she went a different route to get me a New Bucee …. Yay…. Alabama Buc-ee added to my collection. It is almost time for the Arkansas one to open.. August.. just around the corner..

We got home and I was tired… so was mum but she pushed through.. I will say by bed time we were both ready to sleep..

I went swimming with Bubba and Sissy they are staying with us all of them now b/c they have moved all their things to OHIO.. DID I say all of them.. we have a house full. But it has been fun!!

Daddy was at work today doing a training and he couldn’t breath… they sent him home and so Mum took him to the hospital he has had a hard time with some medicine the kidney doctor gave him. He had a very bad reaction, He’s been pretty sick. The nurse in the ER let me help scan his bracelet and scan his medicine and let me be her helper . I was so excited to help. I love helping . She gave me little tubes so I could pretend to be pulling blood and doing what she was doing. It was super fun. Although daddy being sick isn’t super fun. He has swollen like a balloon… This medicine has him super sick and we’ve been worried about him … he put on over 40lbs of water weight..

They gave him something to help with the swelling.. hopefully they will get him off the medication he seems to be having issues breathing, seeing, walking, talking or just living at all it seems.. He sleeps a lot like all day now.

He has been trying to do his school work with all of this going on and that hasn’t been so easy.. Anyway.. I am still hopping around being silly nothing slows me down… I am happy go lucky and still expect food when I am hungry even if it means me making it.. or eating a ding dong.. When mum works and daddy is “resting his eyes” so he says I can eat all the ding dongs I want…. ;) I ate 6 one day.. thought mum was going to put daddy in time out .. but she remembered he loved it… Daddy has spent a lot of time on the swing outside with little Darley.. she loves to be outside a lot …

Sissy last day at work was Friday (her Saturday). Mum and her had a yard sale .. I stayed inside lots of people stopping and buying things… Sissy came inside and went to sleep and mum finished the yard sale.. Sis Blunt came by and they said they would help sell the rest at the church ….

That evening Sissy and Darley left.. I was sad.. I held my little niece and gave her kisses… Mum and Dad were very sad.. I don’t show emotions like that and am not 100% on what all just happened I just know Mum said they are about the same distance as Ollie to get to but it takes a little longer to get to OHIO they are a little further.. So that means no quick hey lets run over and see bubba an sissy tonight … I will see them in October after my Boston appts..

This week and the last week of the crazy hectic month ended with a bang… Megan and Dylan from News Channel 2 came and interviewed me.. I was kind of quiet and not sure about it all. We went to the fire house and did the interview and then they came over and looked at my patch wall and Buc-ee Room. Of course I showed them my 3D printers .. it was a mess down there, But they didn’t care.. they enjoyed seeing all the stuff I printed like my polar bears and all my other fun things..

Can’t wait to see the story they do. We told them how our town has been so supportive of me and how the entire area has helped us to build awareness . Mum is hoping to help lots of kids with rare like me in the future with our new Non-Profit… Run with Liam Rare Ministries…

Can’t wait for everything to come out .. :). take a peek at our new site… www.runwithliamrareministries.org

Into July hoping for a little less going on… need a month to recover after my nieces and nephew… this month.. But sure love them.

Love Liam

Liam

www.runwithliam.org www.runwithliamrareministry.org