10 yr 2 months
10 yr 2 months I am finally well… I was sick for a lot of days and missed Christmas.. it is my favorite holiday and I was sick.. The hospital is not what I wanted for Christmas… Glad I got to enjoy Buc-ees on the way home.. But we already shared that part of my life… it is 2026 , we are back to school and back to therapy weekly. So life has continued as we know it.
Bree , Rob and Zeddie came to see us. They were on their way back to TEXAS from New York. Love seeing Family. Nice when people travel to see us ... That way mummy can talk and I can LEAVE the room and let her chat. I enjoy playing with my cousins and I enjoy the quiet that comes after everyone leaves. I am social but sometimes I just like to sit and be. I am pretty laid back for the most part and don't mind change of routine or change of scenery. But to be home and to have a my space , my routine is nice too. I love my Auntie Bree and Uncle Rob though they are the BEST... Zeddie is a lot of fun. he had a blast on Daisy scooter and she helped him play on it. She is going to be a good BIG sister she is pretty good with little kids.. Can't wait to meet my new Niece .. I always point to her and say baby when sissy is here.. I can say Joy and Daisy! Bubba I always had..
This is a busy month like all of my months they all just go by and there is not much down time … We had Daisy Birthday party.. I had a good time but sometimes I really don’t like to stay as long as mum but I do like being at sissy and Bubbas it was just a lot of little girls.. Love my niece but let me tell you add 8 more of them it is ALOT… I played , walked around and enjoyed cake and then I sat and used my game and sat by Auntie Heather.. it was a safe zone from the girls.. Did I say there were a lot of little girls there?????????!!!!!!!!!!
Back to my Speech, OT and Miss Elizabeth is back so back to PT as well. Back to Singing with Miss Kate!!!
Mr. Tony is not in our class we have had Mr. Tom a sub but they said he was not staying either and that we were not going to have them anymore.. So Just the girls.. Miss AnnaLee and Miss Katie…. Love them both but miss my guys b/c they are tough and I can push and jump around … Really miss Mr. Greg he was so much fun since I was a little kid… Although I am so big now I can’t jump or get picked up anymore.. We have a pretty small class so guess they think the girls got this.. Girls are definitely more driven to get it done.. I just want to relax.. seriously let me get it done and be done!! No more please.
Speech mum went and went over what we did at Napa.. I want to talk and work mum be quiet or I will use my new “Shut Up” word!! I do say please so it is nice… I am doing well with Sit Down, Stop it, more please, and trying to use verbs.
I am writing songs in music therapy.. Daddy has been taking me b/c mum had some things she was doing at another place close by. She did go recently.. But she got me these drums for Christmas and Miss Kate and I have been exploring with them and writing songs.
Horses has been moved to Monday.. I am exhausted on Monday and not 100% sure , plus weather has been terrible they had lighting issues, and fans so we have had some delays … I have new riding clothes and shoes .. not sure I like it but mum said it will keep my stuff from getting torn and help me keep my feet where they belong. New isn’t always in my happy zone.. but I do deal with change as long as she makes a deal with me…
Bubba came and picked me up today.. I got to ride in his big truck without mummy and daddy and go hang out at their house for the first time by myself.. it was a lot of fun.. I love hanging with my Bubba and sissy....
We had Sissy baby shower for Baby Darley and Aunt Mon-Mon came in and helped with it.. Those two are crazy together…we got to go to my favorite new Thai restaurant in Nashville and I got to go shopping and get the car with Daddy mummy kept telling me no to!!! I want it and I got it.. Finally just takes asking the other parent.. (other kids do it right) The shower had Daisy her best friend Trista and her friend Dory! They were crazy girls and I sat with Miss Marian and played my game and she listed and sat with me to help keep me safe from crazy 6 year olds.. Sissy looked beautiful , Darley is really growing … Sissy tummy is big now.. Aunt Monica stayed until Sunday and we all went to eat in White Bluff at the new restaurant over there .. its as really good . And Monica and mummy went to Nashville after and daddy and I went home. I was glad I got to pick her up at the airport… I love going to see all the planes…
We have some bad weather coming in and there is suppose to be a lot of snow.. Time for the polar bears to come out.. .they love the snow… I haven’t printed as much lately b/c it is messy.. daddy is messy… he isn’t as OCD and organized as mum with things and I can’t get to my computer without stuff in the way so I kind of gave up and decided I would just play with other things for a while.. Do still like the machine just not the clutter… We went and saw Miss Michelle and Mr Josh and Kade . Kades grandparents were there and I’ve sort of adopted them since my grandma and grandpa are a ways away an my mum pop and Nana are gone , I didn’t get to meet them but am told I am sarcastic like my pop. He talked for a living and I can’t talk so kind of interesting . Anyway I made Michelle climb a ladder it was so funny. I wasn’t going to climbed it but made her. I was playing on Kade scooter until I got caught exploring. I want to try things without them knowing . That way if I have issues nobody knows .
I am back into remote control cars and asking Grandma for a lot of things again.. She probably likes when I am into printing so I won’t keep sending amazon links since I can’t Charge to mum anymore.. she caught me and now it has tooooo much red tape .. I will get it one day.
I want a game but she said its as not available for me yet.. I went and put the release date on the family calendar so she knows when to download for me. I have learned when I want something I just put It on the calendar since our whole life is a calendar.. If I don’t like something I just move it or cancel it so I don’t have to do it.. mum typically puts it back but I can just remove again!!! 🙂.
I still play Minecraft and it makes me laugh when I fight the creepers and make them chase me.. I can mimic their sounds so it is too funny to me.
I put snow on for Friday but she made me go to school. But I have snow days Monday and Tuesday coming up… yay NO school.. or I thought … I have homework… and not just a little like a week worth good grief… Daddy and I worked on it for about 45 min and I was all done said later no more all done!!! Bye bye school…
WE lost power but mum is smart she made sure I had my hot spot ready for the outage. We have a generator mainly for power outages in the summer since I don’t sweat like everyone else..Although mummy said I had to wear deodorant some now.. I guess she thinks I stink… that is ok I tell her all the time she needs a bath.
I am in a burping phase and love to burp in places I shouldn’t .. it isn’t near as much fun at home but when we are out it is sooo funny.. she tells me to stop but that just makes me laugh and I do it more.. She said I was going to make myself puke.. daddy sometimes will tell me to stop but he normally just sits there and ignores me or laughs , think he likes to torment mummy but he isn’t as much fun as mum to torment since he doesn’t show it bothers him. ALTHOUGH I found his weakness…. I mess with his stuff in the basement.. he uses my 3D printer so technically I should be able to use the machine and filament right…
I am changing things out, cleaning b/c he doesn’t tidy much .. I get in trouble for trashing things I shouldn’t… I get that from mummy.
The power came back on and sissy called to say hers was off. Her, Bubba and Daisy came over b/c it was getting cold in their house after 7 hours.. They tried to get here and trees were down and power lines.. Mark from across the street and Daddy were headed over to help and they got out the way of the power lines b/c some other people crossed it and they took their chances so they could get out and get to safety and FOOD b/c you know when the house is full it is full of food.. mum cooks when everyone is here and she cooks for an army… So we had them hanging out and Daisy playing and having fun in the snow.. I went out for picture but I didn’t want to go outside .. Big people are very weird they like to go get wet and be cold… NOT ME…. I played with Callie their dog she likes the snow too but she likes to lick it so weird.. .
It was nice to have some silliness around here but I always was glad for the quiet time after it all went back to normal.. Well somewhat…. Still out of school this whole week. The whole front yard is now ice after the rain the other day.. it was so cold today.. I went on the porch to see if the mail lady had run .. Sarah is awesome but my green truck has not arrived. Grandma said she would reorder if it didn’t come soon.. I have looked daily for it. I keep telling her Grandma Amazon Green truck.. mum said I have lots of trucks and it will arrive when it is time to arrive.. she sent me tracking but it isn’t moving and it is frustrating.
Mummy hasn’t had a snow day she works remote so she never gets off. Daddy had traded and had a special day off they call it a Kelly day) so we have enjoyed our snow days. I have made them listen and watch Minecraft probably about 200 times and I will watch it another 200 until back to school.. I have some cool new games I want but they have not come out yet.. I have them on the calendar so I don’t forget.
I had a neuro appt with Dr Reddy on Friday …. It was an interesting drive into Nashville with all the ice and the street lights were not all working.. Trees leaning over and cars having to drive in the turning lane not to hit them. We left the appt and went to eat at Maggianos.. I love to eat there.. the waitress was so awesome brought me extra bread and made sure I had plenty of tea… she understood me great.. Daisy was still out and came to hang with us while sissy slept and bubba worked . We had fun running back and forth and being loud! She played her game we watched tv and she played with her Barbies some when I was playing my game .
Mum said I might have school Monday but we have to see how the roads are.. I just put snow day on the calendar.. I did enough homework during my snow days to last me till the end of the year!! Snow day is supposed to be a holiday not work day… but is what it is….
I miss my horses and Miss Kate, Miss Hilary, Miss Elizabeth, and Miss Morgan. But I do like being home.
This month was eventful for the ones that are stuck inside and watching the ice multiply but not a lot to tell on a story … it is boring when I don’t get to go out and make things more interesting for all those around..
Hope you all are warm and not having someone throw ice, snow or make you play in the cold and wear too many clothes to be totally uncomfortable.. I really don’t want to get back to early bed and early rise for school.. The snow days sort of spoil you but life eventually will have get back to normal.
Love you all
Liam ..
www.runwithliam.org
Run With Liam Rare Ministry LLC.
