9 years 10 month
9 years 10 months
Starting off the month going to the State of Representative office To see Mary Littleton she is giving me a signed and sealed copy of the new BILL.. Mummy is sooo excited!! I am just excited I get to go to the BIG building and she always gives me cool erasers and things to play with.. I took pictures and we gave them all shirts for Kleefstra awareness day..
September is really a Busy Month.. I think all months are busy.. and when they aren’t busy they seem even more busy.. Always something going on ..
Gavin & Mallori birthday- My best friend a way to start a busy month.. hanging out.. playing games , watching others swim b/c I don’t want to get in, but I watched everyone else play. I like to hang out and chill but don’t always participate. I am just going to chill b/c I know I will more than likely get Buc-ees afterward.. Mum will take me when we are close and coming to see Gavin I know we are close. :) Daisy and Sissy came also and OG was there also he even wore my shirt..
After the party we loaded up and I said BUCEE!!!! And off we go… Buc-ee yeah…. Finally!!! — Got me a few new school shirts and some food of course and back home we went.. I sit up front now a lot so I like to try to pretend to tell Mum where to go and what to do. I like to call people and change the music …. Next month we have 2 Buc-ees on the way to Boston for my appointments…
Lowes is going to go all out this year and be purple for me.. Can’t wait to see it.. we went by and I got to meet everyone .. I mean they see me all the time but we actually met everyone this time so now I have names and they know who I am .. I got to shake hands, say Hi, sit in the ATV (nobody else gets to do that ) but they made exception for me…. I didn’t want to see the creepy big halloween things but we walked by and I just walked the other way a little.. not scared but not interested… Kori introduced me to everyone … Makayla was with us also …. There is another guy here his name is Joseph and he wrote a book he gave me.. Mummy liked it and bought one for my music therapist and also for school classrooms..
This weekend mum has been cooking all weekend for the bake sale for me at Masonite. She is cooking like crazy.. Sissy came over to help also…. Daisy wants to help but she wanted to eat things as well… When mummy would leave or go to the store I thought it was funny to move the table around. Wasn’t really happy where she had it so I rearranged while she was gone. She came home and I had left it in the living room. She moved it back and went back to getting the food done.. I love being cheeky it is fun.. and when I am bored my brain tells me to do all sorts of things.. I am so strong like the hulk…
Fire Department pictures — pictures pictures and more pictures…… it is the time of year where we are hitting all the fire stations to take pictures in the purple uniforms.. I love the purple …I’m so thankful for the support we have from all of my fire family!!!
We stopped by Docs barber shop, to get the guys sizes. Doc wasn’t there but got to see the rest of the gang and give a sheet about me to them to hang up.
Daddy and Richard birthday party was today and it was so fun.. we sat up the basement an I helped. …I am sooo happy for a cake day.. never a bad time for cake… I love cake…. After the adults had some social time (boring) we went bowling…. Mummy was doing well but Richard was doing way better.. Birthday luck I guess.. Daddy shoulder was hurting but he made it thru 2 games.. we had a lot of fun.. I bowled two as well and had a blast…. Lisa is a lot of fun.. she is mummy bestie.. she brings out the fun in mummy…
We had Church today and everyone got together in their Liam shirts so we could get a Picture of everyone in purple.. Yes you heard me another picture !!! Today Sis Washington Rocked the service,, it was amazing.. She is always soooo full of energy and I love to be around her.. …we even had a Baptism today .. I love watching people get baptized.. I go up from and sit on the pulpit to watch… I was hanging with pastor and telling him about baptisms.. I am going to baptize my super hero before it is all over.. even if I have to do it at home in the pool….
After church we had to go get MORE Pictures at the fire station A Shift We are trying to visit all three stations on each shift to have everyone for pictures this year for Kleefstra day this up coming week..
Therapy day daddy took me we delivered you know what !!! Shirts lol!! More shirts imagine that ! Mum makes we take .
Had special speech with Hilary and she made daddy stay out she wants me to show everyone I’m super smart !!!
Should I show off or play dumb?? Only the test will reveal what I decided…
Tuesday I got out of school and had to go do pictures with C shift . Went to station one got one with Heather and the guys and station 3 we got a picture with everyone there !!! Off to music and dolphins and we stopped for dinner at Maggiano’s . After we finished dolphins we took dinner to dad at firehouse and took the last group picture . we ran over to dispatch after and I got to see Kim and all the dispatchers ! This is where they take 911 calls and help people who need help fast ! They were super nice and I got to meet everyone and see all the cool computer screens and how they dispatch! Pretty exciting for a kid especially as computer kid . My whole life is typing my words and figuring out computers. That is easier than words and communicating with people the way they communicate .
Kleefstra awareness day is here 6:15 we are up and heads out the door to Masonite for our first picture of the day with night and day shift supporters
We left there and ran home to the driveway for mommy to clock into her health job for me. Then to Dunkin to see my people there supporting purple. I love me my Dunkin crew !!!! Now it’s time for school . I got to hand out bracelets to all my peers in the gym today so they knew why they were wearing purple. People wanted the bracelets and mum had to bring more up. Miss Sara has made sure we were acknowledged and supported since our first year at Charlotte . She sent out a text and let everyone know the first year and every year after she has made a point to make me feel SPECIAL…. She helped us get our proclamation with the mayor. And has opened so many doors for awareness for me .
So grateful for my Charlotte school and the love they show me and my family!
We left the school and went over to the economic development office and Curtis and his crew were wearing my shirts !! They are the best ! I was nosey and walked around looking at things and then I was trying to cheese for the next group…
Cafe Gilly had my bracelets out and we headed to sweet Charlotte and Miss Michelle had the whole place decorated and purple for me. Natalie was wearing a shirt and we got another shirt and took pictures . I even allowed mom to take my picture with their camera . Miss Michelle and my first order form I ordered my own food and wrote my name hung up with pictures of me. Love my Charlotte community.. Sweet Charlotte is one of my favorites .. you can’t beat their hot dogs and the popcorn bar is amazing.. mum likes the fudge…
We headed out and took a video of our church marquee with me on it . They were spreading awareness for me. It say Kleefstra awareness day the 17th and then also had information about me… my church family is amazing..
Love my Emmanuel !
Headed into Dickson!!! Doc was at lunch so we headed to Lowe’s!!! And Woah! They were all wearing hair pieces , capes , purples and the whole store turned out for me. They made me my own employee vest with 2 years in lumber on it bc I love the lumber department. Daddy is always buying lumber to fix things …. They gave me my own toys and supplies too. I have socks a power bank. A Lowes hat . Hat for sun. Lunch box, vintage car, purple unicorn, and another car . Have my own apron and hammer . They seriously gave me everything to do my own projects ! And made mommy cry. Adults are weird and cry for weird reasons and they wonder why I can’t figure out emotions. My Dickson Lowes is the best !!! Thank you Kori, Adam and DICKSON LOWES FOR PURPLING OUT FOR KLEEFSTRA AWARENESS.. YALL ARE THE BEST..
(CHIEF GREER & CHIEF SESLER- THANK YOU FOR BEING AMAZING.. THIS MOVEMENT HAS MOVED B/C OF YOU!! You have helped us in ways that are unspeakable and I am so grateful for the community, the family and support we have here… thank you so much for helping my mummy and daddy figure things our and making the stress less stress …… ). Life is too short to be stressed…
We loaded up and headed over to docs ! I love docs ! They got me red hulk green hulk and the new captain America! I got to take a picture with them also. They are always so funny and make me feel like one of them. Thank you Docs for being so supportive… Most important for keeping my hair short so I don’t have to sit and let mummy gel it up!!! Good grief that is a pain!!!
Headed home and had to stop at first federal bank in burns they also dressed up in purple for us !!! Lots of purple and lots of pictures. I’m tired !! I was ready for shower and bed today … no arguing but did ask to watch Minecraft again.. I only watch it a few times a day…
Got home and I was a little bored…. I went down stairs and was setting up the party table and chairs b/c I am ready for daddy real birthday so I get more cake…. I sat it up and took it down a few times and decided daddy likes blue so wanted to see what the blue spray paint would do.. I got the can and sprayed a little on the table and well wasn’t too sure about it so got a paper towel and well I rubbed it in and it wouldn’t wipe off.. I folded the table and chairs and decided I shouldn’t be doing that anymore… I went back upstairs and went back to playing games and looking up new things to print or to get Grandma to buy for me.
Saturday is CAR WASH DAY yippee… they had the lights purple for me.. I helped some but also sat at the table just so people could see my face.. I would get up and waive and I let mummy and everyone work for me .. I mean I am a kid I shouldn’t have to work so hard. Miss Krystin, Matt, Elouise and Taylor came and helped first.. then Miss Katie and her sweet daughter came … after they left Mr. Tony came.. My teachers are so much fun!!!! I love the car wash so much , very thankful for them helping me every year.
We leave on the 3rd for Boston and mummy is working on where we will stay now. She always finds somewhere for us . AS long as we have wifi I am good… :)
Sunday we had church and it was a fun and crazy one … they did go out of order for service which is a little confusing and I was not happy about them skipping a few things but they did catch up at the end…. After we left church we had to go to Nashville and I mummy sat in the backseat while I sat in the front seat.
We went to Tom Make-a-thon to talk about things that would help me in my life. We still want to get a stroller so I can not have to walk so much.. walking makes me tired and is hard … They do get me a wheel chair sometimes but sometimes I have to just deal and that is never easy… we visited and afterward we went to Chuy’s to eat.. I got a burrito but really just wanted chips and American French fries.. and TEA…. We stopped at target on the way home … I love when I talk daddy into Target… :). We don’t stop like we used to, but don’t really need toys since Grandma allows me to shop on Amazon , she sends directly to me whatever my heart desires..
This month was full of PURPLE and lots of pictures.. I am done with pictures but with my mum there will always be pictures….
Onward for travel next month…. Love you all ….. Liam
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