9 years 9 months
9 YEARS 9 MONTHS
SCHOOL STARTED- ON A FRIDAY!! UGH.. I was ready but not ready today and neither was mum.. she just felt a little disorganized and truly showed since we go all the way to school without my device and had to go home to get it so I was literally an hour late that morning and I only go for 4 hours.. She was like nope not missing the first day we miss enough thru the year… So off I went and was ok with that ..
Bea from mummy work came and spent a few nights with us with their kitties it was fun to watch them run around . Bea went to music with me and her and mum walked around while I played with Miss Kate. Mikey and Mike hung out at the house and chilled to rest for the rest of their trip and let the cats enjoy not being in the car. They are going to the new bucees for me and getting me some new clothes .
Back into watching Zootopia.. my favorite part is the howl and I love to act like I am howling . I will sit straight up in bed and howl like a wolf !!!
Had another sleep study done and they said Ii did great! I don’ want to move so you at least get me still with all that stuff on my head! But said my apnea looks real good. I wish the Vandy doctor would have listened to mum way back and i wouldn’t have suffered so long . But you know doctors don’t seem to know what all my mummy knows about me.. The Boston Team does and the doctors that have researched, listened, learned and wanted to know about me.. Like Dr. Lana, Dr. Thomas , Dr. E of course he is the best…. Mummy is getting good at firing people.. She used to let oh but they are nice be the deciding factor until she realized this isn’t working.. Nice doesn’t always get it …
Picture day mum tried to make me wear a polo ! Nope I know I have a Buc-ee shirt we can agree on come on ! She tried a bucee pin , she tried to say I could change but I told her I would 🤮 puke I didn’t like it so we compromised and she did find my collared Bucee shirt . It’s a button up and nicer than a tshirt for her pictures but honestly pictures reflect who you are right???? So why can’t I just wear my tshirt ! That’s who I am!!! A Buc-ee loving boy!!
Mum had these two big tires and a small one under the porch that Sissy left from her BIG truck.. she of course saw something to do with them and put Daddy and me on the project.. We took those ugly old tires and made her cool flower pots.. I loved helping carry the wood, and screw the wood in. I watched daddy cut .. I didn’t want to try that part.. seemed a little scary! …. Sometimes I don’t like to try things that I am not sure of. After I try I do pretty good..
I got a REALLY cool package in the mail from Buc-ee (Kelly sent to me). She got me the new Buc-ee Goes to school book from Buc-ee Dada daughter so Buc-ee sister wrote a book about him going to school. She even signed it for me.. :). I love my Buc-ee’s
Auntie Mary came to see me . I love her I gave her big hugs and enjoyed showing her things . She helped mummy with shirts and organizing for Kleefstra awareness coming up soon. This is a busy time of the year for us. Or for them. I just go with the flow…
We had church today and I took sister Judy up for prayer with me. I always try to find someone new to go up front with me. They typically don’t tell me NO !! Last week I took Alek.
When Auntie Mary was leaving , I showed her how to buckle up in car , how to shift the gears , how to turn the wheel and also helped push the car out of the driveway.
At school I got to play a guitar and the fire department came to visit us this month.. I got to wear the helmet and show the others about firefighting.. I love fire family a lot .. and love sharing all I know with my friends .
Got my room finally done so my big Buc-ee could come upstairs.. now all of my Buc-ees have a place to sit and aren’t all over my floor and my big one is right by my bed where I wanted him!!!! Love my Buc-ee Room!!! Thankful Mark came and helped with my floor..
I’m getting in the pool now with friends and don’t need mum or dad in the pool . Love spraying water and jumping around in the pool ..
Mum is back to making shirts for Kleefstra awareness my neighbor Mande made my design this year it is super cool. 😎. Buy a shirt support our trip to Boston in October and my Napa speech in December this year . Help Me speak please ! Some words are sooo hard ! I really want to talk!!!!
We are back to working on Galileo in am and my music . I love music therapy it really makes my mind ready for school.
I’m learning how to pour . They are trying to make me be more independent. Not sure I like doing things by myself. I ask for help a lot although I truly can do it but a lot easier when people help me. They don’t want to help as much now that I am bigger but I like them to help me.
Honestly would rather be independent on computer and printing things to make the adults be like what and why? Keeping them on their toes!
We are back full swing into school, speech, OT , music, horses and love being busy. Next month is Kleefstra awareness so my busy will be more than I want but it will be a good month !
Buy a shirt!!!! Support Kleefstra awareness !
Love y’all!! Liam
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