Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

I am 3 years and 9 months My Aunt Jamie has been staying with us still . She is still hurting but I love the time I have with her. She’s become one of my sweet cuddle people. My daddy was also sick this month but he is tough so I haven’t taken it easy on him like I have my Auntie J. Daddy can handle it and if I go easy on him he will think I have to always be easy so I push him so he stays active and well. I think he went back to work to have a break. I am cheeky!!!!! I keep everyone laughing .

I am 3 years and 8 months my cousins come to play with me and see us for a few days. I love to have kids around but I hate I can’t communicate like they can and I don’t get to swim with them bc of my ear tubes. Mummy trying to find some ear plugs . I miss the pool. Baby Eve likes me and laughs at me. She loves my toys .

I am 3 years and 7 months. My life is so crazy. School is coming to and end they say it makes me sad I love my friends. I made some neat things for mummy for Mother’s Day! I’m learning so much. I make my mummy smile and watch me all the time. I am able to climb on the bed now they are so surprised I can climb in the car and in my seat but those buckles are super confusing seriously think mummy and daddy struggle with them every time too so they can’t say anything.

I am 3 years and 6 months I am doing better at potty training I love to flush for sure. I am loving building with my blocks more i get as high as I can with out it falling down and then I smash it down and start over. I want to smash it though. If it falls it kind of makes me mad and off to building again so I can knock it down.

We got up and loaded our car up and headed out. Daddy used google maps so we got a neat detour of the city and I don’t say detour lightly we detoured a lot of times apparently mummy said google must have missed the memo of all the road construction and road closures in Philadelphia. We finally made it down town we were going to hibachi but the place was closed and well I wanted to eat hibachi and wasn’t too happy to have to get back into my detour car seat again! But back I went and I made it impossible to buckle and mummy knows how to fix it but ugh! Then I kicked my shoes off and decided to take my socks off well they wouldn’t come off and that made me mad!!!