Run With Liam

Liam's Story

Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.

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Liam Says...

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Oct 02, 2018

2 years and 11 months

I am 2 years and 11 months my last month to be two! All the adults say man I’m getting old on their birthdays so I guess I will say I’m getting old too!!! I am wearing a 5-6 in jeans now they are a little big but they have the pull straps so they fit I am really growing and am extremely strong!!! I got this really neat new bracelet with trains on it that has my name and daddy and mummy’s phone numbers so if I get lost or wonder off but I am normally pretty good at staying with them. Mummy said it keeps me safe!!
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Run With Liam blog photo

Aug 31, 2018

2 years and 10 months

I am 2 years and 10 months I have been to 15 states and 3 countries today marks my last day of my holiday in the fabulous 🇬🇧 United Kingdom. I’ve enjoyed England 🏴󠁧󠁢󠁥󠁮󠁧󠁿 and Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿 this trip. We’ve seen so many friends / family and have enjoyed spending time with them . I’ve been to the London Zoo, Osterley park, Kew Gardens , Hampton’s Court, enjoyed walking the beautiful, but fast paced city of London, made new friends at the local Brentford Pub,I rode a double decker bus and sat on the top and watched the cars below.
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Jun 01, 2018

2 years and 7 months

I am 2 years and 7 months ! This month was very crazy, I had a few test but found out I am super healthy! Although looking at me you can tell I eat my veggies and love my milk . I don’t miss meals for sure mommy cooks all the time for me. I still love stairs and playing in the swimming pool is the best; so glad it’s finally summer. . I love the park it’s still one of my favorite places to play! Being outside is the best athought the bugs drive me crazy in my face .
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