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Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

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7 Year 2 Months

7 years 2 months Today I loved school got to wear my Christmas Buc-ee and everyone was dress super cool they even let me listen to Christmas music love Christmas !!!
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7 Years 1 Month

7 wow! I’m getting old! I’m tall for sure I know I have doctor appt soon that will tell us how big I am but mummy says I wear a size 9 / 10 and I’m 7 if that tells you anything. Size 2/3 shoe /boot I have inserts to help my feet since I’m getting bigger and having issues walking with my feet going somewhat FLAT guess my weight . I’m 65 lbs mummy can’t pick me up as much anymore .
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6 years 12 months

Next thing I know I got a BUC-EE Staff shirt like a real shirt like all of them have!! I am so excited. AS soon as we got to the truck I made mummy put it on my Buc-ee that I left in the truck … and when we got home I took a bath and now I have it on!! So excited I made new friends, saw my best friend Buc-ee and got a new shirt just like my new friends