Run With Liam

Liam's Story

Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.

Read My Stories

Liam Says...

Run With Liam blog photo

Jan 31, 2021

5 years 3 months

5 year 3 months Well I started this month out “ON THE ROAD AGAIN” As Willie Nelson sings we seem to always be on the road. But this trip was to North Carolina to go see my niece for her Happy 1st Birthday…. We arrived and My guess she is my 2nd mum since she is my sissy mum … Heather is the greatest she is my mummy best friend and they have way too much fun together. But it is ok… they make me laugh too! We had Daisy Birthday and I got to play in her ball pit where I hid most of the time and played with my game so the little kids couldn’t find me. I don’t want to run over them bc I am so big .
Continue Reading 327 views
Run With Liam blog photo

Dec 16, 2020

Napa Day 13

Napa Day 13 Daddy arrived yesterday! I was so happy to see him that I gave him lots of hugs and kisses! I kind of missed my daddy. We had Italian food for dinner, but I wanted to play my game and play with the puppies instead of eating. I didn’t want to get up this morning. I wanted to snuggle with daddy instead. I didn’t want to use the potty either because daddy was there. I like to be a stinker when daddy is around. I had French toast for breakfast and we went to therapy.
Continue Reading 392 views