Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

Napa Day 15 Speech I worked on my device today and was doing really good telling what I wanted today. I love I can tell people what I want! I’m getting good... I decided I would play and make silly sentences to show that I can , I mean it’s my last day so I will have to show my full Liam red headed personality!!!

Napa Day 13 Daddy arrived yesterday! I was so happy to see him that I gave him lots of hugs and kisses! I kind of missed my daddy. We had Italian food for dinner, but I wanted to play my game and play with the puppies instead of eating. I didn’t want to get up this morning. I wanted to snuggle with daddy instead. I didn’t want to use the potty either because daddy was there. I like to be a stinker when daddy is around. I had French toast for breakfast and we went to therapy.

Speech we did our vitastim on my cheeks and chin I kind of grunted today but I was good. Shay says I’m patient. She hasn’t seen me in PT. I got to decorate the Christmas tree in her office

Napa Day 11 Speech Started with my morning vitastim set up. She got that ready and we did my mouth stretches . Had to massage and work my lip out she says, Then she did a new tool for my tongue those were weird I gagged .....

Napa Day 10 Today in speech we are trying another device and Ms. Shay wanted to go for a walk I don’t like to leave my mummy. I am having a little separation anxiety from her. I like my mummy around . I know she won’t leave but it makes me feel better if she is with me!!! We went and got the ball and came back I was better when I saw my mum.