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Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

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5 YEARS 6 MONTHS

I got to go to the park in round rock and play on my favorite slide and see Denise!! Was excited for her to cut my hair!!! I love her!!!!! She gives me combs and I help her . We went to eat with Uncle Traye , Aunt Mary and Bree!! I love tortillas !!! And beans!!!! After we ate we went outside and uncle Traye for some reason makes me squeak. I don’t know why. I can’t do it? Mummy can’t do it but when he touches my nose or tummy I squeak! He has some magic touch he makes me make weird noises! I thought it was soooo funny! He also throws me around and it’s a lot of fun. I love my Uncle and Auntie and cousins
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5 years 5 Months

We left for Texas haven’t been there in a long time everyone said I was sooo big now. Guess I am bigger I can get things mummy tried to put up easier bc I can finally reach.
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5 Years 4 Months

February is here… it is still cold around here but daddy and mummy don’t make me get out much unless it is snowing and mummy makes me at least look at it but I normally run right back in
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5 years 3 months

5 year 3 months Well I started this month out “ON THE ROAD AGAIN” As Willie Nelson sings we seem to always be on the road. But this trip was to North Carolina to go see my niece for her Happy 1st Birthday…. We arrived and My guess she is my 2nd mum since she is my sissy mum … Heather is the greatest she is my mummy best friend and they have way too much fun together. But it is ok… they make me laugh too! We had Daisy Birthday and I got to play in her ball pit where I hid most of the time and played with my game so the little kids couldn’t find me. I don’t want to run over them bc I am so big .
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5 years 2 months

Well being 5 years and 2 months has started off with a lot of new scary things in my little life... can I go back to being 4. And can I go back to Tennessee!!!! Texas is proving to be a lot of work!