Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

Everyone is well finally… time for me to fly…. Haha. We went to South Carolina to a BIG Kleefstra Reunion. Mummy said a lot of my Kleefstra brothers and sisters will be here. Well whew… lots of people… outside …. Ok yes very cool weather was great but seriously mummy outside for hours NO game really I seriously have to PLAY and mingle and do what you are good at??? NOPE not having it.

Got up early to help Daddy start his work day . So I thought that’s why mummy got me up early!!! Little did I know all the pool time , running and not allowing me to nap really meant more Stuff in my hair and on my head!!!

I am sleeping well I woke up at 2 kind of to readjust seems in my sleep I don’t worry about my brain quite so much. I toss.......

Started with event at 2:30 I am sleeping here I just want to rock and throw myself onto Paddington then over to the other side. No need to run into the room

Today wasn’t what i expected, mummy said hey we will be at the hospital for a few days no big deal