Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

This week I got to go to speech and I was quite cheeky and giving Miss Hilary a hard time but I feel a little better so why not be silly when I can.

Hematology with daisy! Took blood daisy cried … I could not figure out why she was crying I had a needle in my arm and my blood was leaving my body . I couldn’t figure out why my niece was so upset.

I am going to show the world I am smart… I might not be able to talk like everyone else but I can and will show them I am highly intelligent. Watch out world here I come!!!! But first I still have to figure out how to get the Big Buc-ee…

Hi, I’m Liam. I’m 7 years old and I have Kleefstra Syndrome. I can’t do things other kids my age can do, but with therapy, I am learning. My therapy is costly. I will be traveling with my mommy to Boston in a few weeks for ear surgery to help me hear better and to stop me from getting so many ear infections. My mommy and daddy work hard to support me, but they struggle to afford all of my therapies. We don’t like to ask for help, but we could sure use some help. Please help me get the treatment I need. Thank you for helping me!! Lots of love, Liam.

Boston is as boring and exhausting . Lots of doctors but Mummy learned a lot about my syndrome....