Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Run With Liam Rare Ministry Inc
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Liam Says...
Dec 03, 2019
4 years 1 month
We spent a lot of time traveling this month and I shared adventures from England and Scotland with my Aunties, uncles and cousins.. when we got home I had to get my 4 year old shots . It didn’t hurt I actually slept thru it. But the next day I was pretty miserable. I don’t want to eat , sleeping is hard my legs are feeling weird I keep kicking mummy, Ive had a fever for a few days I never run fever. My body temperature is normally 96.1 and I feel hot and cold and shiver. I am just miserable it’s made my nose run, coughing and I seriously just want to stay in my bed and play with my Paddington he makes me feel better.
Oct 30, 2019
4 years
So I’m 4. Doesn’t that mean I don’t have to be kissed so much since I’m a bigger boy and not a baby???? We got dressed and daddy left for his test and mummy and I went with my Auntie Anne from London to Kew Gardens . We walked around I played with geese (English Geese aren’t mean like American Geese). They are pretty laid back and chill . We went over to a kid play area and I got very brave and tried everything. I wanted inside the flower but I didn’t let mummy put me up in it and I wasn’t quite big enough to climb inside .
Sep 30, 2019
3 years and 11 months
I am 3 years and 11 month We still go to Ginger and Spice to eat a few times a week I think I’m like their #1 customer I pretty much rule the place so I think. I’m going to make sushi like Cim one day . I love my cooking game and I make sushi on it so I know I will learn and it will be great!!!
Aug 31, 2019
3 years and 10 months
I am 3 years and 10 months Mummy said we were going to Morgan’s I looked at her and got excited bc I thought when she had my swim suit we were going to the pool but nope we went in the car and I wasn’t really happy. I took a little nap and pouted a little which I normally didn’t pout much but I am getting the pouting sad puppy eyes down. (It works on mummy).
Aug 01, 2019
3 years and 9 months
I am 3 years and 9 months My Aunt Jamie has been staying with us still . She is still hurting but I love the time I have with her. She’s become one of my sweet cuddle people. My daddy was also sick this month but he is tough so I haven’t taken it easy on him like I have my Auntie J. Daddy can handle it and if I go easy on him he will think I have to always be easy so I push him so he stays active and well. I think he went back to work to have a break. I am cheeky!!!!! I keep everyone laughing .
Jun 30, 2019