Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

4 years 8 months So this month is weird. I have no toys, clothes , furniture , oh and no BED but it’s ok now I’m allowed to sleep in the recliner!!! I’ve had some screen time I’m normally not allowed bc daddy and mummy are trying to load , drive, move and pack. So glad I’m 4 and I don’t have to do the hard stuff. But I do love helping with power tools and helping daddy with the dolly. I even help daddy load and close the trailer . I’m soo big now. Mummy and I stayed here and we have no stove or refrigerator so we have as she says been roughing it. Grandma brought us a mini fridge and I got to see my uncle steestee I love him he’s fun! I’ve worked with mummy a lot cleaning and at her office well I don’t work but I am there and just behave unless she isn’t looking then I want to make copies haha. I don’t hurt anything just like to watch the paper come out it’s sooo funny!!! I really like David he plays with me and does fist bump and walks around with me outside he is super cool.

4 years 7 months I am 4 years and 7 months and am making new progress daily so they say it’s progress to me I’m just figuring out how to do things I want to do and when they won’t do it or get it I will figure it out just you wait. My game is my favorite thing ever and why They won’t let me play it at home is frustrating but I have figured out if I get bigger boxes or stools I can reach. It’s easy to push a box or tote thru the house to the hiding place that isn’t a hiding place bc I know they are there!!!! I took my little stool and put it on the scale and I could almost reach. The step stool tho is definitely the way to go and I am not scared to climb up and down it now.

4 years 6 months Well I guess I can say I’m over staying home!!!! Mummy seems to enjoy torturing me with learning. School was easier . I have gotten so used to being trapped inside I don’t even enjoy going outside as much as I did. Good grief our house has been like upside down stuff everywhere from daddy painting the walls I’ve enjoyed helping him some by helping I mean stealing his tools or nails and hiding or just walking off with them when he isn’t looking and he thinks I am helping him. I’ve been using my drill and helping as much as I can when I’m not being my cheeky self and hiding things. Although the Dewalt is way cooler than my craftsman I got for Christmas . I have been doing a lot of mimicking as they say where i want to do what daddy is doing. That’s apparently a good thing. I love being his shadow. But I also like to drive him up the wall he is painting . When I watch my favorite movies I like to go and get what stuffed animals I have that are in the show. Like Toy story I go get buzz, woody, Jessie. When I watch Peter rabbit I get my rabbit and Paddington I get alll my Paddingtons. I love Paddington.

4 years 5 months. We started this month with the fire banquet I like going because I get to see my fire family. Daddy got the geek award he will kill me for saying it but he’s so good with computers and of course his speech was about as many words as I can speak we seem to have that in common too. We had a good meal I ate my plate and some of daddy’s! I went to the farm this month bet you didn’t guess that and got to see my McKinley and Abigail we played outside while mummy got food for the house .. I love playing with them just hate we don’t stay longer . It’s like we get there and we have to leave as fast as I arrived. I have so much fun there. They have all sorts of neat things there but since it’s a working farm I can’t play with all the neat stuff but I at least get to see it and I get to play with the girls. That’s always the best part.

4 years 4 months Well this month started a little rocky I decided I would roll down the back stairs! It scared me going to be honest but mummy cried more than me. She didn’t even fall and she cried ... grown ups make no sense!!! Daddy hasn’t felt good this month so I got to play with Kay even when he was home. It was nice because she plays outside with me and lets me play with my bugs. Daddy made me put my bug outside and I cried . Now that’s a real Reason to cry mummy!!! Having to give my bug back to the outdoors ! He was my friend and daddy made me let him go! I wasn’t really happy about it.