Run With Liam

Liam's Story

Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.

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Liam Says...

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Oct 30, 2024

8 Years 12 months

for me it means well EXTREME WORKOUT.. CrossFit for kids with disabilities Napa

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Oct 01, 2024

8 YEARS 11 MONTHS

Kleefstra awareness day, my school, Charlotte Elementary and Centennial Elementary as well as White Bluff elementary all were purple for me !!

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Aug 30, 2024

8 year 10 months

The funniest thing I learned so far is that Marines, Army and Air Force love to have names for each other. Sissy and Bubba taught me that Mr Greg would rather be called “Chair Force” so.

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Jul 31, 2024

8 years 9 months

Mummy took me to childrens and they took a picture of my bum with an xray machine to make sure it wasn’t broken.

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Jul 01, 2024

8 Years 8 Months

This month has been a little chaotic.. woke up and Mummy and Daddy were not here.. mummy said she had to take daddy to doctor but I didn’t know that mean I was going to be alone well with my sissy Joy.. not that it matters b/c she is a grown up

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May 31, 2024

8 years 7 months

May was eventful Daddy, Mummy and me all had to be in hospital for a day stuff, Daddy broke his shoulder, I had to get a scope and tubes again and Mummy had to get a BIG kidneys stone removed from her . I had special olympics, Bowling with friends, horse session ended, School is out for summer and surprise visits from friends.. But seems our life is always a mystery and always something to be surprised with..

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Patches for Liam Run With Liam Rare Ministry Inc. Liam's 3D World Liam's Store

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What is Kleefstra Syndrome? IDefine Rare-X

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