Donate

How can you help?

Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

View Post

9 years 7 months

This bill is supposed to help me with therapy so I guess it is a good thing and it is nice that the world is learning or at least Tennessee knows what kLEEFSTRA SYNDROME IS.. and knows it is not Autism ..
View Post

9 years 6 months

I was also working away in the room looking up paddington locations and eating chocolate.. But Grandpa Caught me!! Aren’t grandparents supposed to give you more chocolate … he told on me … here comes daddy and I had not had time to clean up all the wrappers from all the chocolate I got into.
View Post

9 years 5 months

I am very excited about the BIG airplane- Not excited I don’t have a Buc-ees on the way but am EXCITED that I get to go to Paddington STATION and see Paddington .. I have not seen him in 5 years
View Post

9 years 4 Months

This month was full of medical and travel… I am always up to something and don’t ever have a boring normal life .. BUT what is normal.. This is normal for me even though it doesn’t seem normal to others ….