Donate

How can you help?

Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

View Post

4 year 12 Months BIRTHDAY month

4 YEARS 12 MONTHS Birthday month ..... started out still in Texas I haven’t figured out if we will stay in Tennessee or Texas seems we spend time in both although my toys are in Tennessee so hopefully we end up there eventually. But my games are in Texas so
View Post

4 Years 11 months

After spending a few days with my Sissy and Bubba Walker and my niece Daisy and enjoying much needed beach time and family time, we headed home. We stayed over in Virginia and got to go to a natural tunnel. There is a train track under the mountain in a cave. A train actually came while we were there and he stopped for me to see it and take a picture then off into the cave he went like Thomas (my new favorite).
View Post

4 Years 10 Months

4 years 10 months This month started off with us being in Texas trying to get our home here sold so we can tie up loose ends as mummy says. It’s been kind of strange having an empty house but I live to run around and stomp. I’m pretty mischievous and love to get into the cabinets to find my games charging mummy can’t keep me out I and so tall now and I know how to move my stools to climb and get what I want .
View Post

4 Years 9 months

4 years 9 months I am growing but not eating as much since we are still moving . My house in Texas is empty . I have been sleeping on the recliner and I will be honest I love love love it!!! I sleep all night long and it’s so comfy mummy wouldn’t let me when my bed was here but my bed is too small I’m a big boy I need a big bed!!!!!! Hello Daddy you made mummy a bed because he gets to enjoy it so guess what I will sleep in their bed until I get mine.
View Post

4 YEARS 8 MONTHS

4 years 8 months So this month is weird. I have no toys, clothes , furniture , oh and no BED but it’s ok now I’m allowed to sleep in the recliner!!! I’ve had some screen time I’m normally not allowed bc daddy and mummy are trying to load , drive, move and pack. So glad I’m 4 and I don’t have to do the hard stuff. But I do love helping with power tools and helping daddy with the dolly. I even help daddy load and close the trailer . I’m soo big now. Mummy and I stayed here and we have no stove or refrigerator so we have as she says been roughing it. Grandma brought us a mini fridge and I got to see my uncle steestee I love him he’s fun! I’ve worked with mummy a lot cleaning and at her office well I don’t work but I am there and just behave unless she isn’t looking then I want to make copies haha. I don’t hurt anything just like to watch the paper come out it’s sooo funny!!! I really like David he plays with me and does fist bump and walks around with me outside he is super cool.