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Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

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5 years 3 months

5 year 3 months Well I started this month out “ON THE ROAD AGAIN” As Willie Nelson sings we seem to always be on the road. But this trip was to North Carolina to go see my niece for her Happy 1st Birthday…. We arrived and My guess she is my 2nd mum since she is my sissy mum … Heather is the greatest she is my mummy best friend and they have way too much fun together. But it is ok… they make me laugh too! We had Daisy Birthday and I got to play in her ball pit where I hid most of the time and played with my game so the little kids couldn’t find me. I don’t want to run over them bc I am so big .
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5 years 2 months

Well being 5 years and 2 months has started off with a lot of new scary things in my little life... can I go back to being 4. And can I go back to Tennessee!!!! Texas is proving to be a lot of work!
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Napa Day 15

Napa Day 15 Speech I worked on my device today and was doing really good telling what I wanted today. I love I can tell people what I want! I’m getting good... I decided I would play and make silly sentences to show that I can , I mean it’s my last day so I will have to show my full Liam red headed personality!!!
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Napa Day 13

Napa Day 13 Daddy arrived yesterday! I was so happy to see him that I gave him lots of hugs and kisses! I kind of missed my daddy. We had Italian food for dinner, but I wanted to play my game and play with the puppies instead of eating. I didn’t want to get up this morning. I wanted to snuggle with daddy instead. I didn’t want to use the potty either because daddy was there. I like to be a stinker when daddy is around. I had French toast for breakfast and we went to therapy.
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Napa Day 12

Speech we did our vitastim on my cheeks and chin I kind of grunted today but I was good. Shay says I’m patient. She hasn’t seen me in PT. I got to decorate the Christmas tree in her office