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Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

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Napa Day 11

Napa Day 11 Speech Started with my morning vitastim set up. She got that ready and we did my mouth stretches . Had to massage and work my lip out she says, Then she did a new tool for my tongue those were weird I gagged .....
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NAPA DAY 10

Napa Day 10 Today in speech we are trying another device and Ms. Shay wanted to go for a walk I don’t like to leave my mummy. I am having a little separation anxiety from her. I like my mummy around . I know she won’t leave but it makes me feel better if she is with me!!! We went and got the ball and came back I was better when I saw my mum.
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NAPA DAY 9

Today we did vitastim on my cheeks and played with a new tablet (augmentation device) I made it say I like my sister JOJo lol. They got a laugh put of that I am being very loud lately. I picked a puzzle and we did it.
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NAPA DAY 8

Napa Day 8 I’m up I’m up!!!!! Watched Santa play peekaboo with me and Uncle Adam turned on the baby fire truck lights on for me
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NAPA DAY 7

Napa Day 7 In Speech I didn’t get my tickle today (vitastim) we worked on the device and I was very very cheeky