Hi, I'm Liam and I have Kleefstra Syndrome. I live in Dickson, TN. My daddy is a Fire Fighter for the City of Dickson and I love first responders. I also love 3D Printing.

My friends at Wash 37055 and Sweet Charlotte supported me by wearing my shirts on Kleefstra Awareness Day and Wash 37055 donated $1 from every car wash. The Dickson Fire Department went purple for the month of September, wearing purple uniform shirts and hats as well as turning the exterior lights on the stations purple. The Dickson County Sheriff’s Office and, Dickson Police Department, Dickson County EMS and Dickson County EMA all wore purple bracelets.

We are also looking for people to help in any way they can with the building of my therapy room. We applied for a grant, but we didn't get it. We are looking to add on to our house and will need help finishing it out, with both materials as well as volunteers to help with the construction.

Napa Day 4 Speech today we did vitastim it was rough or maybe it wasn’t maybe I am just strong willed

Napa Day 3 Today I was happy for the most part… But I got there early and decided to RUN… But that didn’t help me much… I went Into the Office and I gave Shay a hug I do like her but I didn’t want to sit in the chair but I got in after they well made me…. Shay put this thing on my chin and put tape over it I wanted to pull it off .....

Napa Day 2 Today I ran straight into Shay office . She wasn’t ready but I was! Mummy made me go to bed early and I am ready to go so let’s get moving!!!!! I learned Balloon , go and numerous other things . Mummy blew a balloon and would let it go I laughed and laughed... I had to sit in a chair and had a table. Shay did a lot of things in my mouth and helped with my lips and showing me .....

Napa Day 1 Well that was interesting to say the least! I am not sure what just happened!!

5 years 1 month Well the journey begins ..... I’m 5 what does that mean .... well to me it means I’m not 4 anymore. I have to count one more finger to get to my age and of course it means I’m taller, stronger , cuter (as if that could be possible ).