Run With Liam

Liam's Story

Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.

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Liam Says...

May 01, 2016

6 months

6 months I roll from front to back and from back to front . I can do crunches but can sit up by myself yet and it is soooo aggravating! I talk all the time and love to stand and jump ! I'm almost 17lbs and am 25 1/2 inches long . I sleep almost all night and have started eating apples , squash and pears so far all of them are yummy. I love to eat my fingers and play with my toys and still love fireman Sam. :-)

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Apr 01, 2016

5 months

I can't believe Liam is 5 months old.. where does time go.. Amazed how quickly he is changing and growing.

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What is Kleefstra Syndrome? IDefine Rare-X

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