Mom updates are never as fun. We are working on the program as much as we can considering the circumstances... Liam and I have traveled over 16,000 miles in the last few months

So life seems like it is super hectic.. this virus from China has caused us to be stuck at home and it definitly wears on you after a while.

Today I’m in my mind a lot. Watching people’s sweet littles hit milestones, do karate, ballet, have friends it is so sweet to watch them grown but hard to watch my precious little not progress into the stage of being 4.

Pictures credits go to Jennifer Rice https://sparrowsheartphotography.com Sparrow Heart Photography January 2020 Doman Program Kleefstra Syndrome Journey..... The new Year for us Started a bit different than other families It sure seems my life can’t be the slightest Normal or laid back. I don’t know why I can’t lose weight seems like Liam was diagnosed and my metabolism told me it had Kleefstra too and took a nap ... a permanent nap that is. I never realize how alone parents of special needs kids are. I mean having friends people to come over and hang out or that just understand the melt downs, the program and just the new day to day life. Even volunteering to maybe come Hang out and help a little guess it’s scary and they don’t understand so easier to stay away than to learn. And having a caregiver is more for people in countries that care to help people . America well not so much no help just tons of red tape and lots of reasons why you don’t qualify even though Liam is diagnosed with a disability that could affect him forever .

Day like these.... Christmas is 14 days away and I am trying to get in the mood... At least it is a little cooler...