Run With Liam

Liam's Story

Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.

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Jan 01, 2026

10 YEARS 1 MONTH

Saturday I feel sooo bad still I had 105 last night today I am at 102-103.2 I feel just so sleeping and my body is hurting.. I want to be in bed or the shower I have asked to take a lot of showers .. we were supposed to go see people tonight and get some things they had for me. But I am not going anywhere.. I will stay here with daddy. Mummy ended up going to see everyone and grab things that we were going to get we are not going to the cookie decorating on Sunday so she met up with Shawn and Cynthia too they got me a Buc-ee Jersey with Tennessee on it. :). Mummy got a cool bag and a shaker for drinks. Daddy and I just slept while she was gone. Daddy hasn’t done much here but he is getting plenty of sleep and me too. I still am very tired so I went to bed. Mummy got home and checked on me again and gave me some meds to help me not feel yucky. But she brought me 12 EGGS from Buc-ees from Her and Melissa.. She said Melissa said I deserved them all so they got me all of them.. it did make me smile and I was excited to look inside all of them.. Sad I missed seeing all of them and sad I didn’t get to go to Bastrop Buc-ees

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Dec 01, 2025

10 Years OLD

I got a new snow globe and since most were occupied I was trying to figure out how to get inside and well ended up making a mess with the snow inside and needless to say have not figured out a way in with bucee !!

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