Run With Liam

Liam's Story

Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.

Recent Stories

Monthly updates

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Aug 31, 2019

3 years and 10 months

I am 3 years and 10 months Mummy said we were going to Morgan’s I looked at her and got excited bc I thought when she had my swim suit we were going to the pool but nope we went in the car and I wasn’t really happy. I took a little nap and pouted a little which I normally didn’t pout much but I am getting the pouting sad puppy eyes down. (It works on mummy).

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Aug 01, 2019

3 years and 9 months

I am 3 years and 9 months My Aunt Jamie has been staying with us still . She is still hurting but I love the time I have with her. She’s become one of my sweet cuddle people. My daddy was also sick this month but he is tough so I haven’t taken it easy on him like I have my Auntie J. Daddy can handle it and if I go easy on him he will think I have to always be easy so I push him so he stays active and well. I think he went back to work to have a break. I am cheeky!!!!! I keep everyone laughing .

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Jun 30, 2019

3 years and 8 months

I am 3 years and 8 months my cousins come to play with me and see us for a few days. I love to have kids around but I hate I can’t communicate like they can and I don’t get to swim with them bc of my ear tubes. Mummy trying to find some ear plugs . I miss the pool. Baby Eve likes me and laughs at me. She loves my toys .

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Jun 02, 2019

3 years and 7 months

I am 3 years and 7 months. My life is so crazy. School is coming to and end they say it makes me sad I love my friends. I made some neat things for mummy for Mother’s Day! I’m learning so much. I make my mummy smile and watch me all the time. I am able to climb on the bed now they are so surprised I can climb in the car and in my seat but those buckles are super confusing seriously think mummy and daddy struggle with them every time too so they can’t say anything.

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