Run With Liam

Liam's Story

Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.

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Recent Stories

Monthly updates

Run With Liam blog photo

Apr 30, 2024

8 years 6 months

Thursday is Kleefstra reunion pack up and head to South Carolina day to see all my Kleefstra Brothers and Sisters.

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Mar 30, 2024

8 years 5 months

Mr. Greg told me to go sit in my seat so we could work and I told him NO on my talker.. I am getting good with saying NO… But for some reason when I say NO and when adults say no it works different.

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Feb 29, 2024

8 years 4 months

Daddy has been teaching me to spell new words also.. Like ARMPIT! Mummy said that is gross but we think it is funny…

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Run With Liam blog photo

Jan 30, 2024

8 years 3 months

I decided to would FaceTime people on my iPad and take their pictures when they answered ! I thought it was funny !! I woke people up but they can’t be mad when they see me being silly. I make everyone laugh!!!

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