Run With Liam

Liam's Story

Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.

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Liam Says...

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Jan 06, 2023

Napa Mini - Intensive Day 4

I hate today was my last day. I’m going to miss them mommy cried!

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Jan 05, 2023

Napa Mini-Intensive Day 3

Dance buddy right here!! Love DMI mummy named it Dance Movement Intensive because me and Savanna dance a lot and play

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Run With Liam blog photo

Run With Liam blog photo

Jan 05, 2023

Napa Mini-intensive Day 2

Did tip toe high five with Buc-ee and hopped on one foot. She had me hopping on one foot to different colors.

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Jan 04, 2023

Napa Mini intensive Day 1

She got a little bolster I was excited and mummy called it a baby and so I got to do easy one once and got the bigger one and that was hard! Mom let me have an easy day please .

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Dec 30, 2022

7 Year 2 Months

7 years 2 months Today I loved school got to wear my Christmas Buc-ee and everyone was dress super cool they even let me listen to Christmas music love Christmas !!!

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Nov 30, 2022

7 Years 1 Month

7 wow! I’m getting old! I’m tall for sure I know I have doctor appt soon that will tell us how big I am but mummy says I wear a size 9 / 10 and I’m 7 if that tells you anything. Size 2/3 shoe /boot I have inserts to help my feet since I’m getting bigger and having issues walking with my feet going somewhat FLAT guess my weight . I’m 65 lbs mummy can’t pick me up as much anymore .

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Patches for Liam Run With Liam Rare Ministry Inc. Liam's 3D World Liam's Store

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What is Kleefstra Syndrome? IDefine Rare-X

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