Run With Liam

Liam's Story

Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.

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Monthly updates

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Mar 01, 2021

5 Years 4 Months

February is here… it is still cold around here but daddy and mummy don’t make me get out much unless it is snowing and mummy makes me at least look at it but I normally run right back in

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Jan 31, 2021

5 years 3 months

5 year 3 months Well I started this month out “ON THE ROAD AGAIN” As Willie Nelson sings we seem to always be on the road. But this trip was to North Carolina to go see my niece for her Happy 1st Birthday…. We arrived and My guess she is my 2nd mum since she is my sissy mum … Heather is the greatest she is my mummy best friend and they have way too much fun together. But it is ok… they make me laugh too! We had Daisy Birthday and I got to play in her ball pit where I hid most of the time and played with my game so the little kids couldn’t find me. I don’t want to run over them bc I am so big .

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Dec 30, 2020

5 years 2 months

Well being 5 years and 2 months has started off with a lot of new scary things in my little life... can I go back to being 4. And can I go back to Tennessee!!!! Texas is proving to be a lot of work!

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Dec 18, 2020

Napa Day 15

Napa Day 15 Speech I worked on my device today and was doing really good telling what I wanted today. I love I can tell people what I want! I’m getting good... I decided I would play and make silly sentences to show that I can , I mean it’s my last day so I will have to show my full Liam red headed personality!!!

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