Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Recent Stories
Monthly updates
May 01, 2023
7 YEARS 6 MONTHS
This week I got to go to speech and I was quite cheeky and giving Miss Hilary a hard time but I feel a little better so why not be silly when I can.
Mar 31, 2023
7 Years 5 Months
Hematology with daisy! Took blood daisy cried … I could not figure out why she was crying I had a needle in my arm and my blood was leaving my body . I couldn’t figure out why my niece was so upset.
Mar 01, 2023
7 years 4 Months
I am going to show the world I am smart… I might not be able to talk like everyone else but I can and will show them I am highly intelligent. Watch out world here I come!!!! But first I still have to figure out how to get the Big Buc-ee…
Feb 27, 2023
Ear Surgery in Boston
Hi, I’m Liam. I’m 7 years old and I have Kleefstra Syndrome. I can’t do things other kids my age can do, but with therapy, I am learning. My therapy is costly. I will be traveling with my mommy to Boston in a few weeks for ear surgery to help me hear better and to stop me from getting so many ear infections. My mommy and daddy work hard to support me, but they struggle to afford all of my therapies. We don’t like to ask for help, but we could sure use some help. Please help me get the treatment I need. Thank you for helping me!! Lots of love, Liam.
Run With Liam Rare Ministry





