Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Recent Stories
Monthly updates
Dec 04, 2020
NAPA DAY 5
Napa Day 5 Today I was happy happy mummy gave me hot chocolate and it made me ready to go went into shays and asked for vitastim and asked to get in the chair. We did a lot of animals and massaging on my lips . I love massaging in my mouth. I also got to practice on an augmentation device... I did very well today and really enjoyed it. I’m getting better and more comfortable..
Dec 03, 2020
NAPA DAY 4
Napa Day 4 Speech today we did vitastim it was rough or maybe it wasn’t maybe I am just strong willed
Dec 02, 2020
NAPA DAY 3
Napa Day 3 Today I was happy for the most part… But I got there early and decided to RUN… But that didn’t help me much… I went Into the Office and I gave Shay a hug I do like her but I didn’t want to sit in the chair but I got in after they well made me…. Shay put this thing on my chin and put tape over it I wanted to pull it off .....
Dec 01, 2020
NAPA DAY 2
Napa Day 2 Today I ran straight into Shay office . She wasn’t ready but I was! Mummy made me go to bed early and I am ready to go so let’s get moving!!!!! I learned Balloon , go and numerous other things . Mummy blew a balloon and would let it go I laughed and laughed... I had to sit in a chair and had a table. Shay did a lot of things in my mouth and helped with my lips and showing me .....
Run With Liam Rare Ministry



