Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Run With Liam Rare Ministry Inc
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Monthly updates
May 22, 2022
SLEEP STUDY / EEG 5/21-5/22
Got up early to help Daddy start his work day . So I thought that’s why mummy got me up early!!! Little did I know all the pool time , running and not allowing me to nap really meant more Stuff in my hair and on my head!!!
May 15, 2022
Vandy MEU. 48 Hour EEG Day 3
I am sleeping well I woke up at 2 kind of to readjust seems in my sleep I don’t worry about my brain quite so much. I toss.......
May 14, 2022
Vandy MEU. 48 Hour EEG Day 2
Started with event at 2:30 I am sleeping here I just want to rock and throw myself onto Paddington then over to the other side. No need to run into the room
May 13, 2022
Vandy MEU. 48 Hour EEG Day 1
Today wasn’t what i expected, mummy said hey we will be at the hospital for a few days no big deal