Run With Liam

Liam's Story

Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.

Recent Stories

Monthly updates

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Mar 31, 2022

6 years 5 Months

We don’t travel much anymore , I honestly am home more than anything . We go to therapy three days a week. I have speech and OT on Mondays and have been working on riding a new trike

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Mar 01, 2022

6 Years 4 months

Today started my new month new journey.. Everyday is a new journey I never know what to expect. I am really working on my sounds with Miss Hilary so much fun we play lots of games and she knows how to tease me to make me say words… I want to say things really bad and I try really really hard! It is just really hard when I say things it doesn’t ever sound the way I want........

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Run With Liam blog photo

Jan 31, 2022

6 Years 3 Months

6 Years. 3 months This month started off cold but really neat other than my Santa being buried in the snow and my mummy and daddy trying to make me ride down the hill in the laundry basket and it wouldn’t slide b/c the snow was coming inside… NOT COOL!!!.......

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