Run With Liam
Liam's Story
Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.
Run With Liam Rare Ministry Inc
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Monthly updates
Dec 16, 2020
Napa Day 13
Napa Day 13 Daddy arrived yesterday! I was so happy to see him that I gave him lots of hugs and kisses! I kind of missed my daddy. We had Italian food for dinner, but I wanted to play my game and play with the puppies instead of eating. I didn’t want to get up this morning. I wanted to snuggle with daddy instead. I didn’t want to use the potty either because daddy was there. I like to be a stinker when daddy is around. I had French toast for breakfast and we went to therapy.
Dec 16, 2020
Napa Day 12
Speech we did our vitastim on my cheeks and chin I kind of grunted today but I was good. Shay says I’m patient. She hasn’t seen me in PT. I got to decorate the Christmas tree in her office
Dec 14, 2020
Napa Day 11
Napa Day 11 Speech Started with my morning vitastim set up. She got that ready and we did my mouth stretches . Had to massage and work my lip out she says, Then she did a new tool for my tongue those were weird I gagged .....
Dec 11, 2020
NAPA DAY 10
Napa Day 10 Today in speech we are trying another device and Ms. Shay wanted to go for a walk I don’t like to leave my mummy. I am having a little separation anxiety from her. I like my mummy around . I know she won’t leave but it makes me feel better if she is with me!!! We went and got the ball and came back I was better when I saw my mum.