Run With Liam

Liam's Story

Follow Liam and his family through milestones, funny moments, hard days, community support, and life with Kleefstra Syndrome.

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Liam Says...

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Aug 31, 2018

2 years and 10 months

I am 2 years and 10 months I have been to 15 states and 3 countries today marks my last day of my holiday in the fabulous 🇬🇧 United Kingdom. I’ve enjoyed England 🏴󠁧󠁢󠁥󠁮󠁧󠁿 and Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿 this trip. We’ve seen so many friends / family and have enjoyed spending time with them . I’ve been to the London Zoo, Osterley park, Kew Gardens , Hampton’s Court, enjoyed walking the beautiful, but fast paced city of London, made new friends at the local Brentford Pub,I rode a double decker bus and sat on the top and watched the cars below.
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Jun 01, 2018

2 years and 7 months

I am 2 years and 7 months ! This month was very crazy, I had a few test but found out I am super healthy! Although looking at me you can tell I eat my veggies and love my milk . I don’t miss meals for sure mommy cooks all the time for me. I still love stairs and playing in the swimming pool is the best; so glad it’s finally summer. . I love the park it’s still one of my favorite places to play! Being outside is the best athought the bugs drive me crazy in my face .
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Apr 01, 2018

2 years and 5 months

I am 2 years and 5 months! I am a character ! I love to stick my tongue out for selfies now! My grandma asked who taught me that but I taught myself bc it’s funny!! I love the game “where’s Liam” it always makes me smile laugh and hide! I went to two new states this month Maryland and Pennsylvania!! So now I’ve been to 13 states and 2 countries! I got to meet my great grandpa ,my Aunt Michele, and my aunt Ilona and Uncle Roy.
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